Effie Parks

Effie Parks

Rare Disease,Patient Advocate

Effie Parks was born in the magical land of Montana, where she was raised with her 12 loving siblings. After moving to Washington and marrying her husband, they were blessed with the birth of their son, Ford Canon Parks. When she learned that Ford had been born with an extremely rare genetic condition – CTNNB1 syndrome – she dove into the world of advocacy. Now, she is the host of her own podcast, Once Upon a Gene, where she speaks to others about their journey through life with rare disease. To reach Effie check out her website https://effieparks.com/ and find her on Twitter https://twitter.com/OnceUponAGene. Grace Vinton is a patient advocate, digital health influencer, and dynamic communications professional with a passion for promoting people and innovations that save lives in healthcare, health IT, pharma, and life sciences. Grace is fluent in media, social media, and viral marketing platforms and has a top 1% most viewed LinkedIn profile with numerous healthcare industry heavy hitters as followers of her regular healthcare technology industry news and commentary. You can also find her on Twitter: @HITeaWithGrace - also the name of her HIT Like a Girl podcast show. While drinking tea and spilling the tea, Grace interviews women executives and patient advocates who are making a difference in digital health.


Related Episodes
Rare Disease Day Collaboration: Parents, Patients, and Podcasts

Rare Disease Day Collaboration: Parents, Patients, and Podcasts

Welcome to this special podcast cross collaboration with HIT Like a Girl, Parents as Rare, One Upon a Gene Podcast, Simply Unbreakable podcasts on Rare Disease Day - February 28th! HIT Like a Girl’s guest host Grace Vinton moderated a panel with Effie Parks, Adam Johnson, and Kristy Dickinson on the...