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Welcome to this special podcast cross collaboration with HIT Like a Girl, Parents as Rare, One Upon a Gene Podcast, Simply Unbreakable podcasts on Rare Disease Day - February 28th! HIT Like a Girl’s guest host Grace Vinton moderated a panel with Effie Parks, Adam Johnson, and Kristy Dickinson on the...
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Join us in welcoming Charlene Son Rigby, CEO of RARE-X to the pod! Charlene is a seasoned informaticist, accomplished business woman, and passionate mother to two, including one with a rare disease. In the fight to find her daughter’s diagnosis, she brought her tech savvy to the table and soon after...










